Psychological problems in parents of children with orthopedic pediatric congenital disorders
DOI:
https://doi.org/10.31282/joti.v4n3.81Kata Kunci:
psikologi, orangtua, kelainan kongenital, orthopaediAbstrak
Menjadi orangtua dengan anak yang terlahir dengan kelainan kongenital dapat sangat meresahkan dan membuat stres yang berkepanjangan. Kondisi depresi bisa dialami oleh orangtua terutama ibu.
Semakin cepat orangtua terutama ibu mengetahui adanya kelainan kongenital pada anaknya maka semakin baik pula ibu akan mempersiapkan mekanisme koping/adaptasi (coping mechanism) terhadap kecacatan itu. Orang tua dari anak dengan kelainan kongenital memilih untuk ikut berperan secara kolaboratif dengan tim medis
Diperlukan kesabaran, kekuatan dan ketabahan serta rasa perhatian yang tinggi. Dalam perjalanan keseharian pada saatnya keluarga akan menemukan cara baru untuk dapat berinteraksi sebagai keluarga seutuhnya. Peran komunitas ini menjadi penting sebagai dukungan sosial maka datang serta berinteraksi/bermain dengan anak sangat berpengaruh terhadap emosional.
Tenaga medis semestinya mampu memberikan pelayanan komprehensif untuk orangtua dari anak dengan kelainan kongenital, mereka harus perhatian terhadap kebutuhan yang kompleks dari keluarga tersebut yang dimulai dari hari ketika orang tua menerima diagnosis atau kecurigaan terhadap adanya kelainan kongenital.
Referensi
Farrell, M. and Corrin, K. (2001). ‘The stigma of congenital abnormalities’, in Mason, T., Carlisle, C. and Watkins C. (ed.) Stigma and social exclusion in healthcare. Psychology Press, London and New York, pp. 51-62.
Christianson, A., Howson, C.P. and Modell, B. (2006), Executive summary : The hidden toll of dying and disabled children, Global report on birth defects, March of Dimes Birth Defects Foundation, New York. [Accessed : 7 July 2022]
Drotar, D., Baskiewicz, A., Irvin, N., Kennell, J. and Klaus, M. (1975). The adaptation of parents to the birth of an infant with a congenital malformation: a hypothetical model, Pediatrics, 56(5), 710-7. Available at : PMID: 1196728.
Beresford, B., Rabiee, P., and Sloper, P. (2007) Outcomes for Parents with Disabled Children, Research Works, 2007-03, Social Policy Research Unit, University of York: York. [Accessed : 7 July 2022]
Bawalsah, J.A. (2016). Stress and coping strategies in parents of children with physical, mental, and hearing disabilities in Jordan, International Journal of Education, 8(1), 1-22. Available at: http://dx.doi.org/10.5296/ije.v8i1.8811
Cousino, M.K. and Hazen, R.A. (2013). Parenting stress among caregivers of children with chronic illness: a systematic review, Journal of Pediatric Psychology, 38(8), 809-28. Available at : https://doi.org/10.1093/jpepsy/jst049
Madrigal,V.N., Carroll, K.W., Hexem, K.R., Faerber, J.A., Morrison, W.E. and Feudtner, C. (2012). Parental decision-making preferences in the pediatric intensive care unit, Critical care medicine. 40(10), 2876-82.
Heiman, T. (2021). Parents’ Voice: Parents’ Emotional and Practical Coping with a Child with Special Needs, Psychology, 12, 675-691. Available at : https://doi.org/10.4236/psych.2021.125042
Ozbay, F., Johnson, D.C., Dimoulas, E., Morgan III, C.A., Charney, D. and Southwick, S. (2007). Social support and resilience to stress: from neurobiology to clinical practice, Psychiatry, 4(5), 35-40.
Burton, L.J. and Younger A. (2009), Study Guide to Accompany Psychology, 2nd Australian & New Zealand edn, Wiley, Queensland.
Skotko B. (2005). Mothers of children with Down syndrome reflect on their postnatal support, Pediatrics. 115(1), 64-77. Available at : https://doi.org/10.1542/peds.2004-0928
Sapkota, N., Pandey, A.K., Deo, B.K. and Shrivastava, M.K. (2017). Anxiety, depression and quality of life in mothers of intellectually disabled children, J Psychiatrists’ Association of Nepal, 6(2), 28-35. Available at: http://dx.doi.org/10.3126/jpan.v6i2.21757
Kim, J., Gong, H.S., Kim, H.S., Seok, H.S., Oh, S. and Baek, G.H. (2019). Parenting stress in mothers of children with congenital hand or foot differences and its effect on the surgical decision-making for their children, Journal of Orthopaedic Surgery, 27(2), 1-10. Available at : https://doi.org/10.1177%2F2309499019838900
Esan, O., Akinsulore, A., Yusuf, M.B. and Adegbehingbe, O.O. (2017). Assessment of emotional distress and parenting stress among parents of children with clubfoot in south-western Nigeria, SA Orthopaedic Journal, 16(2), 26-31. Available at : http://dx.doi.org/10.17159/2309-8309/2017/v16n2a2
Benjamin, C. (2001). ‘Aspects of stigma associated with genetic conditions’, in Mason, T., Carlisle, C. and Watkins C. (ed.) Stigma and social exclusion in healthcare. Psychology Press, London and New York, pp. 63-75.
